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Interview with Reggie Bibbs on his life with neurofibromatosis

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Interview with Reggie Bibbs on his life with neurofibromatosis

Friday, December 14, 2007

Neurofibromatosis (NF) is a genetic condition causing benign tumors (neurofibromas) to grow along certain types of nerves and, in addition, it can affect the development of bones or skin. There are several variants of the disease but type 1 and type 2 NF account for the vast majority of cases.

The disease manifestations can vary from very mild to severe. Major symptoms include growths on and under the skin; skin pigmentations called café au lait spots in type 1; acoustic nerve tumors and consequent hearing loss in type 2. Growths can affect nearly all parts of the body, and pressure on nearby structures can cause a wide variety of complications. There is a small risk that the tumors transform into malignant cancerous lesions.

NF is one of the most common single-gene human diseases; around 1 in 2,500-4,000 live births are affected by NF-1, whereas NF-2 occurs in about 1 in 50,000-120,000. Both type 1 and 2 are autosomal dominant conditions, meaning that only one copy of the mutated gene need be inherited to pass the disorder. A child of a parent with neurofibromatosis and an unaffected parent will have a 50% chance of inheriting the disorder. The gene responsible for NF-1 and possibly NF-2 is thought to function as a tumor suppressor gene.

In most cases of neurofibromatosis 1, patients can live normal and productive lives. In about 25-40% of patients there is an associated learning disability with or without ADHD. In some cases of neurofibromatosis 2, the damage to nearby vital structures, such as the cranial nerves and the brainstem, can be life-threatening. When tumors are causing pain or disfiguration, surgery is thus far the only proven beneficial treatment option.

Reggie Bibbs is a 43-year-old-man living in Houston, Texas. Mr Bibbs was born with a genetic disease called neurofibromatosis (NF), which causes him to develop tumors on his body (see infobox on the right). NF can be a subtle disease, but in Bibbs’ case it has left him with a disfigured face and deformed leg. But he is happy with the way he looks, and doesn’t want to change his appearance to please other people. He has launched a successful campaign entitled “Just Ask”, and that’s just what Wikinews did in a video-interview.

The interview was prepared by Wikinews reporter Michaël Laurent with the help of Bertalan Meskó (who has a popular genetics and web 2.0 blog). Their questions were sent to a close friend of Mr. Bibbs, Lou Congelio, who kindly conducted the interview.

Contents

  • 1 Infobox: What is neurofibromatosis?
  • 2 The interview
    • 2.1 On neurofibromatosis
    • 2.2 Growing up
    • 2.3 A head to toe body tour
    • 2.4 The daily life of Reggie Bibbs
    • 2.5 Raising awareness and his campaign
  • 3 Sources
  • 4 External links
This exclusive interview features first-hand journalism by a Wikinews reporter. See the collaboration page for more details.

  • 18 Aug, 2018
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  • 18 Aug, 2018
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Moscow celebrates Victory Day with military parade

Monday, May 11, 2009

On May 9, Moscow heralded its celebrations of Victory Day with one of the largest military parades seen since the fall of the Soviet Union through the Red Square and the streets of Moscow. Signifying the defeat over Nazi Germany in 1945 in World War 2, Victory Day continues to be one of the most poignant and emotional celebrations and national holidays in Russia. Estimates of more than 27 million lost lives during the war continues to leave a vein of sadness in Russia.

Victory day began early in Moscow with inner city streets being closed from 6am and the major entrance of Tverskaya Ulitsa completely locked down with all access to non-military blocked until the end of the parade. Tens of thousands of people lined the upper parts of Tverskaya to see the exit of the military as well as the air force fly-over on their entrance to Red Square. In total more than 9,000 troops, 69 planes and a huge collection of armored vehicles, tanks, and massive anti-aircraft missile defense systems ensured that Moscovites and the rest of Russia will remember Victory Day 2009.

In scenes reminiscent of the end of the war military bands played around the city until all hours of the night. At Leningradsky station departing veterans and widows danced and celebrated with younger generations whilst loudly singing the national anthem. As trains departed, staff handed out flowers in recognition of the contributions made and loud cheers were heard across the many platforms. In a touching event it seemed to bond the generations of yesterday and today.

Preparations for the military parade began months ago with regular rehearsals in Alabino including the erection of a mock Red Square and Kremlin to ensure authenticity. Final dress rehearsals took place in Moscow on May 7 including a full practice of the air show. On display for the first time was the S-400 air defense system which is capable of intercepting airborne targets at ranges up to 400 kilometers (249 mi).

Following the official parades and ceremonies, Red Square and the the inner city was opened to the public, albeit under extreme security and an ever watching eye from Interior Ministry troops. During the afternoon there was an estimated crowed of over 100,000 which entered Red Square to admire the parade ground and decorations, including the official stand for the dignitaries.

Closing the festivities was a series of fireworks in fourteen different locations throughout Moscow including the grand display over the Kremlin and Red Square.

  • 18 Aug, 2018
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Saudis boycott Danish dairy produce

Friday, January 27, 2006

On January 26, 2006, a massive boycott of dairy produce from Arla Foods started in Saudi Arabia over what is perceived as a Danish attack on Muslim values. The Saudi ambassador to Denmark has been recalled for consultations.

The Danish/Swedish dairy company Arla is facing a massive loss after a spreading boycott of its produce in Saudi Arabia. Four Saudi retail chains have already removed Arla products from the shelves. One retail chain has placed yellow warning tape (common fare for accidents and crime scenes) over Arla products. There have been cases reported of Arla delivery trucks being attacked by stones thrown from bystanders. Marianne Castenskiold, a senior consultant for Dansk Industri, expressed a fear that the boycott will spread to other countries in the region and have detrimental effects on other Danish products. Denmark is one of the leading exporters of agriculture in northern Europe, whose economy is heavily dependent on foreign trade and investment.

The boycott has been announced at Friday prayer services in Saudi mosques since January 20, 2006, obviously helping to foment popular support of the nation’s response to Denmark’s alleged ignorance of Muslim values. On at least one occasion, a delivery truck has been greeted by thrown stones.

The boycott is a response to the publication of an article in a major Danish newspaper, Jyllands-Posten. In its September 30, 2005 issue, the paper printed 12 drawings of the Muslim prophet Muhammed, as a response to previous news reports that the publisher of a forthcoming childrens’ book about the prophet had had difficulty in finding an illustrator, due to fear of extremist reactions; drawings of the prophet are prohibited by Islamic Law (see aniconism). In an attempt to start a debate over freedom of speech in Denmark, the newspaper printed 12 drawings of the prophet. Four of these were of a satirical nature, with one showing the prophet with a turban hiding a lit bomb.

The immediate reactions to the publication of the drawings included ambassadors from 12 Muslim countries demanding that the Danish Prime Minister, Anders Fogh Rasmussen, denounce the newspaper. Rasmussen rejected this demand, stating that “Danish freedom of speech does not allow the government to control what newspapers print”. He further noted that the only possible legal action against the newspaper would be one under the charge of blasphemy.

A debate ensued over the following months about freedom of speech and its value in relation to avoiding religious taboos. In mid-December 2005, a delegation from several Danish Muslim organizations went on a tour in several Middle-Eastern and Arabic countries, reportedly to gain sympathy for their point of view. Several reports state that during the tour the difficulties faced by Muslims in Denmark were grossly overstated.

  • 17 Aug, 2018
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Human Rights group seeks judicial remedy for Philippine torture victims

Thursday, June 26, 2008

The Hong Kong based Asian Human Rights Commission or AHRC appealed to the Philippines government to seriously pursue judicial options against victims of torture in the country.

The AHRC press statement was issued as part of the commemoration of the United Nations‘ International Day in Support of Victims of Torture calendared every June 26.

AHRC is a regional non-governmental organization monitoring and lobbying human rights issues in Asia. The Hong Kong-based group was founded in 1984

The statement claimed that the Philippines Constitution specifically prohibits torture but there was no specific law against it, The group also lamented that, “there no judicial remedy for a violation of this right, torture has also not been declared a crime in the Philippines.”

An appeal was also conveyed to the Supreme Court to plan and implement remedies for torture victims and appealed to the country’s law makers to enact a law specifically banning and criminilizing any acts of torture.

AHRC compared the Philippines to Sri Lanka, wherein both countries are signatories to the Convention against Torture Act of 1994 of the United Nations.

The group cited that, “Sri Lanka has already complied with its obligation under the convention, the Philippines, which has signed and ratified the same U.N. convention against torture, has not done so despite being a party to the convention since June 1987.“

  • 17 Aug, 2018
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WikiLeaks: Uttar Pradesh Chief Minister Mayawati sent jet to collect shoes

Monday, September 5, 2011

According to United States diplomatic cables passed to WikiLeaks, Mayawati, Chief Minister of the Indian northern state Uttar Pradesh, made use of her private jet to have sandals collected from Mumbai.

Mayawati, a member of the Bahujan Samaj Party (BSP) – which claims to follow a Dalit Socialism ideology – self-identifies as a Dalit. The Dalits are largely those traditionally regarded as Untouchables within Indian society.

One cable, named “Portrait of a Lady”, recently published by WikiLeaks describes the 55-year-old Mayawati as, “a first-rate egomaniac who is obsessed with becoming prime minister”.

“When she needed new sandals, her private jet flew empty to Mumbai to retrieve her preferred brand,” a cable dated October 23, 2008 states; adding, the chief minister is paranoid about her security and fears assassination, employing food tasters to guard against poisoning. The US embassy documents state Mayawati celebrates her birthday each year by receiving millions of dollars in gifts from party members, civil servants and business people whilst officials vie for a chance to feed her cake. An account of Mayawati making a state minister do sit-ups in front of her as punishment for a minor protocol error is included.

Further allegations report a cost of $250,000 to run as a parliamentary candidate for the BSP headed by Mayawati; this allegedly due to institutionalised corruption. “She constructed a private road from her residence to her office, which is cleaned immediately after her multiple vehicle convoy reaches its destination,” the cables claim.

Mayawati, often referred to as the “Dalit Queen”, has been criticised many times, notably for the building of numerous statues of Buddhist and Dalit icons, and of herself.

The single, ex-school teacher, has as-yet not responded to the allegations made in the newly published cables.

  • 17 Aug, 2018
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Ontario Votes 2007: Interview with Family Coalition Party candidate Bill Bernhardt, Kitchener Centre

Thursday, October 4, 2007

Bill Bernhardt is running for the Family Coalition Party in the Ontario provincial election, in the Kitchener Centre riding. Wikinews’ Nick Moreau interviewed him regarding his values, his experience, and his campaign.

Please note that Bill provided his answers in “ALL CAPS”; due to the time constraints of this election coverage, it remains in this typographic style.

Stay tuned for further interviews; every candidate from every party is eligible, and will be contacted. Expect interviews from Liberals, Progressive Conservatives, New Democratic Party members, Ontario Greens, as well as members from the Family Coalition, Freedom, Communist, Libertarian, and Confederation of Regions parties, as well as independents.

  • 17 Aug, 2018
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What Is Clearlight Acne Treatment?

Submitted by: Kirsten Hawkins

Regardless of skin type, approximately 80% of the population will suffer from acne, one of the most common and pervasive skin problems, at some point in their lives.

Many of the oral forms of acne treatment products cause side effects, which is why many people choose to avoid them.

This is why researching what your acne treatment needs are is crucial.

[youtube]http://www.youtube.com/watch?v=eE0Fyxi_KdQ[/youtube]

However, there is a solution for acne treatment; and each is dedicated to providing adequate treatment for the unique cases presented by the different types of acne sufferers. It is clear that there are many acne treatment products on the market. And most do work as described. So the option of purchasing acne treatment products is just a short drive away.

For those individuals who are looking for a better quality acne treatment process, the answer might be clearlight acne treatment. This is a novice device which has very few and or no side effects and is known as the clearlight acne treatment.

It is effective in clearing the acne; however, it is very expensive and you might have to go for maintenance treatments. Clearlight acne treatment helps reduce further outbreaks which are a common complaint for acne sufferers.

The best feature about clearlight acne treatment is that it is a light-based system used for clearing acne. The light penetrates and kills the bacteria from within the skin, killing acne at its roots.

The another good feature about clearlight acne treatment is that it is focused on clearing the acne-affected areas and does not damage the surrounding skin areas. To make things even better, it works in only four weeks.

Like every other acne treatment product available in the market, you have to do your research. Get all your concerns addressed and find out if this type of acne treatment will meet your needs and be sensitive to your budget.

About the Author: Kirsten Hawkins is a freelance writer specializing in skin conditions such as acne and rosacea. Visit

acnesolution411.com/

for more information on acne and acne treatments.

Source:

isnare.com

Permanent Link:

isnare.com/?aid=26289&ca=Medicines+and+Remedies

  • 16 Aug, 2018
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Scientology protest group celebrates founder’s birthday worldwide

 Correction — March 19, 2008 The next protest is scheduled for April 12, 2008. The article below states April 18 which is incorrect. 

Saturday, March 15, 2008

The Internet group Anonymous today held further protests critical of the Church of Scientology.

The global protests started in Australia where several hundred protesters gathered at different locations for peaceful protests.

In a global speech, the Internet protest movement said Scientology “betrayed the trust of its members, [had] taken their money, their rights, and at times their very lives.” The protesters welcomed the public interest their protests have led to, and claimed they witnessed “an unprecedented flood of Scientologists [joining] us across the world to testify about these abuses.” The group said it would continue with monthly actions.

In a press statement from its European headquarters, Scientology accused the anonymous protesters of “hate speech and hate crimes”, alleging that security measures were necessary because of death threats and bomb threats. This also makes the Church want to “identify members” of the group it brands as “cyber-terrorists”.

Wikinews had correspondents in a number of protest locations to report on the events.

Anonymous states that the next protest is scheduled to take place on April 18, which happens to be the birthday of Suri, the daughter of Tom and Katie Cruise.

Contents

  • 1 Location reports
    • 1.1 Adelaide, Australia
    • 1.2 Atlanta, Georgia
    • 1.3 Austin, Texas
    • 1.4 Boston, Massachusetts
    • 1.5 Brussels, Belgium
    • 1.6 London, England
    • 1.7 Manchester, England
    • 1.8 New York, New York
    • 1.9 Buffalo, New York
    • 1.10 Seattle, Washington
    • 1.11 Sydney, Australia
    • 1.12 Portland, Oregon
  • 2 Related news
  • 3 Sources
  • 16 Aug, 2018
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Living Room Tables Your Choices Are Many}

Get More Information Here:

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Submitted by: Jesse Akre

While a lot of homeowners think long and hard about the style, color and fabric of their upholstered furnishings, selecting tables can be an afterthought. Yet, the right table, or should we say tables, can make or break a room.

There are an endless variety of living room tables to choose from, not only in terms of styles, finishes and sizes, but also in terms of types of tables. Not all living room tables are created equal and knowing the difference between them can help you select the right mix for your home.

Lets take a look at the different tables and their uses:

[youtube]http://www.youtube.com/watch?v=XfIfW6LtoaI[/youtube]

Coffee table. Once referred to as a cocktail table, it is a fairly recent addition to the living room, yet it has become indispensible. Often, if space or funds are limited it is the first and often only table a room needs. Coffee tables are traditionally large and low, not more than 2 above the top of your sofa cushions. It is usually placed either in front of or between upholstered pieces. Its close proximity makes it perfect for serving drinks or food, as guests can easily set their plates and glasses down on these very handy living room tables.

End tables. These living room tables are usually found at the end of a sofa, sectional or love seat or between two occasional chairs. They can match the coffee table or have a different style, though the end tables themselves should match. They are taller than the coffee table, but usually not more than 6 lower than the side arm of the sofa or sectional, allowing guests to set drinks or food on them easily. They are usually large enough to hold a lamp and many models offer a drawer, shelf or cabinet for storage.

Occasional tables. These are small versions of end tables. They are usually as tall as end tables, but have a smaller surface area, making them perfect for rooms that have tight or limited spaces, such as a small apartment or a room that is long but not extremely wide. They come in a variety of shapes and styles, and can be used as a single focal point, much like an accent table.

Accent tables. These living room tables are designed to contrast and complement the room, i.e., serve as an accent. They are usually more ornamental or have features that make them standout visually, such as a tabletop that can be lifted so the table can be set flush against a wall. These living room tables are great for displaying collections, hosting plants or holding the overflow of goodies that arrive during the holidays. They are the most versatile of all living room tables, since they can be used in place of end tables or any other table in the room. They are also fun to have since they dont have to match the rest of your dcor. They can be a different shape, style, theme or finish.

Specialty tables. Within these major groupings you find specialty tables. This can include nesting tables, which are either stacked or nested to save space. These living room tables can be used in place of end tables or serve as an accent table, depending on the size and style you choose. They can also work well between two chairs, providing you with a little additional table space when guests are over. You can also get coffee tables that double as ottomans or have a lift top, allowing you to enjoy dinner in front of the fireplace or TV.

One of the best places to shop for living room tables is online. Online retailers have an endless variety of tables to choose from, allowing to quickly find the pieces that fit your needs and tastes quickly and easily.

About the Author: Jesse Akre owns Edenvale Shoppes and hosts numerous furniture and furnishings for any home whether it be

towel bars

or

outdoor benches

styles and designs.

Source:

isnare.com

Permanent Link:

isnare.com/?aid=908352&ca=Advice}

  • 16 Aug, 2018
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